Participation Is Optional
Members will choose whether to consider individual research opportunities.
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Coming soon: research opportunities built around specific, informed consent — participation will always be optional.
Coming soon
Research participation is not open yet. When it is, it will be built around informed consent, transparency, privacy, and meaningful patient participation.
Members will choose whether to consider individual research opportunities.
Research consent will be separate from general platform terms and apply to a defined study.
Eligible research will have to follow applicable ethics, privacy, and institutional review requirements.
Participants will be able to see who is conducting a study, what data it requests, and how it may be used.
Where legally and ethically permitted, studies may offer compensation or other clearly disclosed benefits.
Members will be able to review their participation history and withdrawal options.
Compensation, when available, depends on the specific study, participant eligibility, applicable rules, and study design.